ACT
Signup:
Mom
Business
Login:
Search Suggestions
    EXPLORE
    Moms Who Like This
    Wom Editorial
    This Horrifying Condition is Why You Need to Look At Your Baby More Carefully
    26.8K engaged
    Parenting Health & Safety
    Download WOM app IOS WOM App Android WOM App
    NF1 syndrome in babies
    27 July 2016

    This Horrifying Condition is Why You Need to Look At Your Baby More Carefully

    3 mins read
    Health & Safety
    for Baby
    26.8K engaged
    Was your baby born with a birthmark? These are extremely common in babies and usually caused due to the birthing process and the time they spend through the birth canal. In fact, they are the little blemishes that make our babies even cuter, and as the elders in the family say, protect them from “buri nazar”. There are other babies around the world who have some “birthmarks”, though slightly more curious ones. The doctors tell their moms this is nothing to worry about. Until one day, the babies are diagnosed with cancer and other serious ailments…

    Advertisement

    Little Tansy was eight years old and in hospital with a chest infection. It was then that her doctor pointed out marks on her skin that he wanted to get tested. They were not birthmarks. They were symptoms of a genetic condition called neurofibromatosis (NF1) that makes the body vulnerable to tumour growth.


    “If Tansy hadn't had gone to the hospital and the doctor hadn't seen the marks, she might still not have been diagnosed,”
    said her Mom. “How many times had she been to a GP since she was born for childhood illnesses – and no one spotted it?”


    Source

    Neurofibromatosis is a syndrome that can affect the brain, nerves, spinal cord and skin. Worse, it can trigger the growth of tumours all over the body. While these tumours may be non-cancerous at first, your baby has a much higher chance of developing cancer over his lifetime. And not just this, he could also suffer from social problems such as anxiety or depression, experience developmental delays, and battle with a whole spate of psychological and cognitive problems. It is heart-breaking and life-altering…

    Could Your Baby Be Suffering From This Condition?


    The marks associated with this condition are called “cafe au lait” or CAL spots, because of their coffee-brown colour. There is no known cause for this condition yet. It is simply a genetic mutation in the NF1 gene and could happen to anybody, for no rhyme or reason. These marks usually look like this:http://wom-cdn.s3.amazonaws.com/common/160727112918CALPicture: kwizoo.com
    Check this list carefully to see if your baby displays any of the associated signs:
    • Freckles in the armpit or groin area
    • Six or more café-au-lait spots
    • Nodules in the iris of the eye
    • Rubbery lumps under the skin
    • Lesions in the eye which leads to poor eyesight or even blindness

    Read This To See What Your Baby’s Birthmark Means


    If you suspect that your baby could be displaying even one of the above signs, immediately see your doctor. There is treatment available for this condition and it involves surgery to remove the neurofibromas. You will also have to take your baby for periodic medical evaluation and ensure that his symptoms are managed, with no new tumour growth. With advancing medical research, treatment is possible and all hope is not lost. However, any delay in getting treatment can be prove to be damaging, or even fatal, especially for young children.

    The bottomline is this - not every curious mark or bump on a baby’s body is simply a birthmark! So the next time you hear a new parent dismiss a suspicious bump in their baby because the doctor told them “it’s just a birthmark”, request them to be doubly sure. We can all make mistakes in diagnosis. But even the slightest lack of caution in this scenario can mean your baby’s life may never turn out to be like the beautiful dream you had woven for him. Be careful!


    Cover Image Source: 1

    Follow us for what motherhood is really about #nofilter
    Sign up for the most useful reads to make your life easier. #TestedByMoms

    Advertisement



    Album

    related reads - Parenting
    WOM Logo
    Get the World Of Moms App Everything For Moms, By Moms
    Download
    New Message
    To All
    Subject
    Message
    Send
    Cancel
    Moms Who Like This
    Comments
    Comments
    Update Login Preference
    Your current login is through Facebook, but you can now choose an Email Login!
    Save and Update
    Cancel
    Create a new password
    Strengthen the security of your account with a new password.
    It must be 6 characters long
    Forgot your password? reset here
    Save and Update
    Cancel
    Forgot Password
    Please submit the email address associate with your account and we will send you a link to reset password.
    SEND
    Your current login is through Facebook, but you can now choose an Email Login!
    You can edit your login preferences at any time by going to your Profile
    Switch to Email Login
    CREATE EMAIL LOGIN
    I'd rather use Facebook!
    OR

    Menu
    Profile
    Invite Moms
    Logout
    26.8K Engaged
    0 Likes
    0 Comments